Last night I was able to see Lydia for the first time. She is a trooper, that’s for sure! She is hooked up to so many machines and is on a lot of medication for only being 4 days old! It was heart-breaking to see her cry. Her little body would tense and tears rolled down her face, but because of the breathing tube, no sound came out. It has to be so frustrating for Andrew and Jena to not be able to pick her up and comfort her.
At 6:30 the Doctor came in to check on her and said that, “She was forcing his hand,” to remove the ventilator and take out the breathing tube. She was at the point where she was doing most of her breathing on her own and keeping the ventilator in would be (almost) over-protecting her. He said he was going to come back in an hour and make a decision then.
It wasn’t until 11pm, last night, that I got a text from Jena saying that the ventilator was turned off and they were going to remove the breathing tube. At midnight, she sent another text saying that everything went great. Lydia was sleeping and the next hour would be a good indicator of her progress.
This morning, Jena said, the dopamine, anitbiotics, and fentanyl would be given to Lydia as needed. She is being weaned off of the steriod she was on and they have discontinued all other drugs! They will take the artrial catheter out today and then hopefully, Jena and Andrew will be able to finally hold her! AND, Lydia is breathing 100% on her own without any problems. Please continue to pray that there will not be a set-back in progress!
The nurse said that Lydia has dumb-founded the staff at Children’s. She was transferred there because they were going to do a possible ECMO. In ECMO is basically a life-saving technique that mimics the natural function of the heart and lungs, allowing an infant to rest while healing takes place. The procedure involves channeling the patient’s blood into a roller pump that serves as the child’s heart throughout treatment. The pump sends the blood through an oxygenator, which serves an as artificial lung, infusing the blood with oxygen and removing carbon dioxide and returning it to the patient. However, within 30 minutes of being at Children’s, Lydia started to show improvement. So much improvement, in fact, that the ECMO did not have to be implemented. The progress and recovery has been incredible! Of course, while the Nurses say they are dumb-founded we know that credit must be given where credit belongs. How great it is to know the mercy-giving, healing-hand of God.
Thank you so much for your continued prayers for Jena, Andrew, and Lydia. Please continue to pray for the journey ahead. We do not know how long Lydia will remain at Children’s and we pray that she will continue to improve and stay healthy beyond anyone’s comprehension!
(This is the most recent picture of Lydia after all of the machines, etc have been removed.)